Not everyone will have the same kind of life with Marfan Syndrome because some people have a severe case, while others have a less severe case. Many people with Marfan Syndrome have to always worry about their stress levels because they can't put to much stress on their heart. They can't just get up and play football with a friend or go ride a bike; they always have to check with a doctor and see if their heart will be able to take such physical activity. Many doctors give their patients a list of things they can do and how long they can do it, so you can be active. People with Marfan syndrome (9 times out of 10) are way above normal height, so many people get comments and stares on how tall they are. When you have Marfan Syndrome you are not allowed to smoke or use tobacco products.
please can I ask where you obtained this picture from.... do you have permission to use it ?
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